Dementia Matters in Powys

Other useful resources and advice

Other useful resources and advice

Please find below a selection of resources and advice that we hope you will find useful. Those resources that have an asterisk after the title are available from Dementia Matters in Powy's in paper form.

resources produced by dementia matters in powys

Do You Experience Memory Problems? (leaflet)*

Are you aware of the services available in the Brecon, Crickhowell or Hay area? This leaflet contains a list of LOCAL services which may be able to help you.

http://www.dementiamatterspowys.org.uk/download_file/view/104/273

Powys Library – Your Library Can Help (leaflet)*

Powys Library Service has over 70 titles on dementia to support those with dementia, their family and carers. They are also of help to those who are interested in helping their community to become more dementia-friendly.

English version:

http://www.dementiamatterspowys.org.uk/download_file/view/102/273

Welsh version:

http://www.dementiamatterspowys.org.uk/download_file/view/103/273

general resources

Living with Dementia: An Insiders Guide to Dementia

This booklet was originally produced by the Cardiff Memory Team and has been adapted for Powys. It has been written by people who have received a diagnosis of dementia through a memory clinic. It offers their perspective and advice. Though their views are personal and may be different to yours, we hope you will find them helpful to manage your own experience of living with a diagnosis of dementia.

http://www.dementiamatterspowys.org.uk/download_file/view/49/273

Hints and Tips Leaflet*

Nearly 70 per cent of people with dementia said that the main reason they stop going out is a lack of confidence. Your encouragement and support will help people living with dementia to remain part of the community, be more active in the local area and live more enjoyable, fulfilled lives. Here are some simple tips that may help you.

English version:

http://www.dementiamatterspowys.org.uk/download_file/view/105/273

Welsh version:

http://www.dementiamatterspowys.org.uk/download_file/view/106/273

Magic Moments

This booklet offers inspiration and stimulates creative thinking into what makes lives, for older people living in care homes that little bit more meaningful and fulfilling.

The words of the songs ‘Little Things Mean a Lot’ and ‘Magic Moments’ sum up the importance of little acts of kindness. Knowing what matters most to someone can be used to make their lives more meaningful as well as creating a feeling of self-worth.

The stories in this booklet are real experiences shared by real people living in, visiting and working in care homes in Carmarthenshire, Pembrokeshire and elsewhere in Wales.

http://www.dementiamatterspowys.org.uk/download_file/view/94/273

resources for businesses and organisations

Dementia is Everybody’s Business

Leaflets designed especially to support people in making their businesses more dementia-friendly. By making simple changes to businesses, you can help customers with dementia to stay active in the community.

http://www.dementiamatterspowys.org.uk/download_file/view/75/273

http://www.dementiamatterspowys.org.uk/download_file/view/81/273

http://www.dementiamatterspowys.org.uk/download_file/view/52/273

Resources for Children and Young People

The Elephant Who Forgot

An engaging book designed for young children to help them to understand how dementia could be impacting their own grandparents and older relatives. Available in all Powys libraries with additional copies from The Parent Network CCB, YMCA Aeron Place, Gilfach, Bargoed, Caerphilly, CF81 8JA.

Additional resources for helping young children and teens to understand about dementia listed below:

https://kids.alzheimersresearchuk.org/young-kids/

https://www.alzheimers.org.uk/info/20029/daily_living/23/explaining_dementia_to_children_and_young_people

RESOURCES FOR carers

A Road Less Rocky

https://carers.org/article/road-less-rocky-supporting-carers-people-dementia

A road less rocky is a report from Carers Trust (2013) that found that carers of people with dementia are not getting the support and advice they often desperately need.

The report found that only 51% of carers questioned said that they were given an opportunity to talk separately about their needs and how much care they felt able to provide.

56% of carers questioned said that they had not received information about managing the medication of those they cared for. More than half (52%) of carers said that they had been given no information on how to cope with incontinence.

Information gaps at critical points in carer journey

The report found that there were a number of critical points along a carer’s journey where they would most value information and support. These critical points include:

  1. When dementia is diagnosed
  2. When the carer takes on an 'active' caring role
  3. When the capacity of the person with dementia declines
  4. When the carer needs emotional support and/or a break from caring
  5. When the person with dementia loses their mobility
  6. When the person with dementia has other health problems
  7. When the carer has to cope with behavioural problems
  8. When the carer's own circumstances change
  9. When the person with dementia becomes incontinent
  10. When decisions about residential care and end of life care have to be made

A Carers Road Map

https://carers.org/article/carers-road-map-guide-carers-people-dementia

This online guide is for anyone who cares for someone with dementia.

Receiving a diagnosis of dementia can be an enormous shock, not only to the person with the diagnosis but also for their close relatives and friends. But it is important to remember that people can live well with dementia, and with the right support can stay living in their own home, and participating in community life. Family and friends play a vital role in supporting and caring for those diagnosed with dementia. While this can be enormously rewarding it can also be quite daunting. The Carers Road Map aims to guide carers through their caring experience and provide practical advice and information to help family and friends who are supporting someone with dementia. Some of the information in the guide may be useful to you early on, when the person you care for is first diagnosed with dementia, and some at a later stage. You may also find it useful to dip into at different times.

Triangle of Care

https://professionals.carers.org/sites/default/fil...

Although the Triangle of Care was originally developed for use in mental health services, the standards outlined below have been found applicable in other care settings. This guide demonstrates how these standards can be used to support a partnership approach to dementia care, particularly in hospital settings. The Triangle of Care for Dementia describes how meaningful involvement and inclusion of carers can lead to better care for people with dementia. In an ideal situation the needs of the carer and the person with dementia are both met. Inclusion of people with dementia and support in making decisions is therefore fundamental to its success. This will then complete the triangle.